Comments for Mom's Blog http://blog.therippeleffect.com Teens not just surviving through cancer...but living through cancer Mon, 06 Feb 2012 06:09:02 +0000 http://wordpress.org/?v=2.2.1 Comment on Where did normal go? by Robin Wiley http://blog.therippeleffect.com/2009/06/16/where-did-normal-go/#comment-555 Robin Wiley Tue, 23 Jun 2009 00:53:16 +0000 http://blog.therippeleffect.com/2009/06/16/where-did-normal-go/#comment-555 Hi Cindy, Love reading your blogs and emails in the past on what your "new world" is (and was) like battling cancer. It helped to understand it better to see it from your side and Joey's side. Thanks for sharing your life so open and honestly. Blessings and Good Health, Robin Hi Cindy,
Love reading your blogs and emails in the past on what your “new world” is (and was) like battling cancer. It helped to understand it better to see it from your side and Joey’s side. Thanks for sharing your life so open and honestly.
Blessings and Good Health,
Robin

]]> Comment on Mouth Sores by Joey's mom http://blog.therippeleffect.com/2009/01/30/mouth-sores/#comment-369 Joey's mom Sun, 26 Apr 2009 21:04:18 +0000 http://blog.therippeleffect.com/2009/01/30/mouth-sores/#comment-369 The "magic mouthwash" is also called Powel's Solution. Powel's Solution has the exact ingredients - benadryl, tetracyclin, hydrocortisone, Nistatin - but Powel's may also contains Lydocaine to help with the pain. It its miraculous stuff. A good probiotic is beneficial also. You can get this from a compounding pharmacist - and can be prescribed by a dentist or doctor. P.S. excuse spelling errors - some of the drug names are difficult. The “magic mouthwash” is also called Powel’s Solution. Powel’s Solution has the exact ingredients - benadryl, tetracyclin, hydrocortisone, Nistatin - but Powel’s may also contains Lydocaine to help with the pain. It its miraculous stuff. A good probiotic is beneficial also. You can get this from a compounding pharmacist - and can be prescribed by a dentist or doctor. P.S. excuse spelling errors - some of the drug names are difficult.

]]> Comment on Coming Soon… by Lori Crews http://blog.therippeleffect.com/2008/10/16/coming-soon/#comment-49 Lori Crews Wed, 11 Feb 2009 16:09:17 +0000 http://blog.therippeleffect.com/2008/10/16/coming-soon/#comment-49 Hi Joey! My name is Lori Crews and I work at Watson Wyatt - I worked for your dad before he retired. I had heard about your fight with cancer and was really impressed with how well you did and how strong you were in getting through all the treatments you had to endure. Just last week we found out that our 17 year old granddaughter (Brooke Salazar) has Hodgkin's Lymphoma. A year ago she was having difficulty breathing when she ran the bases (she has always been in All-Star softball and was often playing in the Championships). Since she is the fastest runner on her team, they took her to her pediatrican to see what was wrong. But her pediatrician, instead of doing any tests, just told her that she was "out of shape"! Two weeks ago (2/1/2009) she collapsed during a game and they rushed her to the ER. The doctor noticed that she had "clubbing" of her fingertips (the tips of her fingers got wider and the nails started to curve downwards). This is a sign of a lack of oxygen into her bloodstream. The doctor ordered some tests for her heart - and EKG, an echocardiogram, and a chest x-ray (2/3/2009). They did the chest x-ray first and found a mass that was 6 centimeters by 8 centimeters and it was pressing on her heart and wrapped around her aorta and airway. This was the reason she was having trouble breathing and getting chest pains when she ran. That night (2/3/2009) they admitted her to Children's Hospital in New Orleans (that's where I'm from, originally and my family still lives there) and started doing every test in the book - CT scan, MRI, PET scan, etc. They put her partially under anesthesia and removed 90% of a lymph node in her right shoulder, took samples of bone marrow from her hips, and installed a "central line" for administering medicine and drawing blood. Last Friday (1/6/2009) they gave us the news that it was definitely Hodgkin's Lymphoma. Because of where it is they said they would not do surgery. She's going to have a course of chemotherapy and possibly radiation therapy. Saturday night (1/7/2009) they started the first round of chemo - they're using "Red Devil", one of the most potent of this new generation of chemo. It was really scary for her when they gave her a mouth wash they said would help keep her from having sores in her mouth; and when they told us we had to put on heavy rubber gloves to handle her urine collector when we measured her "output". She had her third (and last for this go-round) chemo on Monday night (2/9/2009), and she may get to go home from the hospital later today (2/11/2009) or tomorrow. They will show my daughter (Erin) how to flush out her "central line" and administer the medications that she has to take home with her. Linda Wauson gave me the link to your site, and here I am! ;> We would very much like to hear and tips you may have for getting Brooke through the chemo with as few side effects as possible. Just knowing that another young person her age has gone through this and survived is very encouraging to her. Sorry about the long post, it's hard to tell a story like that in just a few words. Hugs, Lori Hi Joey! My name is Lori Crews and I work at Watson Wyatt - I worked for your dad before he retired. I had heard about your fight with cancer and was really impressed with how well you did and how strong you were in getting through all the treatments you had to endure.

Just last week we found out that our 17 year old granddaughter (Brooke Salazar) has Hodgkin’s Lymphoma. A year ago she was having difficulty breathing when she ran the bases (she has always been in All-Star softball and was often playing in the Championships). Since she is the fastest runner on her team, they took her to her pediatrican to see what was wrong. But her pediatrician, instead of doing any tests, just told her that she was “out of shape”!

Two weeks ago (2/1/2009) she collapsed during a game and they rushed her to the ER. The doctor noticed that she had “clubbing” of her fingertips (the tips of her fingers got wider and the nails started to curve downwards). This is a sign of a lack of oxygen into her bloodstream. The doctor ordered some tests for her heart - and EKG, an echocardiogram, and a chest x-ray (2/3/2009). They did the chest x-ray first and found a mass that was 6 centimeters by 8 centimeters and it was pressing on her heart and wrapped around her aorta and airway. This was the reason she was having trouble breathing and getting chest pains when she ran.

That night (2/3/2009) they admitted her to Children’s Hospital in New Orleans (that’s where I’m from, originally and my family still lives there) and started doing every test in the book - CT scan, MRI, PET scan, etc. They put her partially under anesthesia and removed 90% of a lymph node in her right shoulder, took samples of bone marrow from her hips, and installed a “central line” for administering medicine and drawing blood.

Last Friday (1/6/2009) they gave us the news that it was definitely Hodgkin’s Lymphoma. Because of where it is they said they would not do surgery. She’s going to have a course of chemotherapy and possibly radiation therapy. Saturday night (1/7/2009) they started the first round of chemo - they’re using “Red Devil”, one of the most potent of this new generation of chemo. It was really scary for her when they gave her a mouth wash they said would help keep her from having sores in her mouth; and when they told us we had to put on heavy rubber gloves to handle her urine collector when we measured her “output”.

She had her third (and last for this go-round) chemo on Monday night (2/9/2009), and she may get to go home from the hospital later today (2/11/2009) or tomorrow. They will show my daughter (Erin) how to flush out her “central line” and administer the medications that she has to take home with her.

Linda Wauson gave me the link to your site, and here I am! ;> We would very much like to hear and tips you may have for getting Brooke through the chemo with as few side effects as possible. Just knowing that another young person her age has gone through this and survived is very encouraging to her.

Sorry about the long post, it’s hard to tell a story like that in just a few words.

Hugs,

Lori

]]> Comment on Coming Soon… by Cathy from Colorado http://blog.therippeleffect.com/2008/10/16/coming-soon/#comment-3 Cathy from Colorado Sun, 26 Oct 2008 18:38:17 +0000 http://blog.therippeleffect.com/2008/10/16/coming-soon/#comment-3 You are a True Inspriaton to others, to golf fans, cancer survivors and non-cancer survivors. Your fight and determination to Live a QUALITY of Life will sustain you and bring HOPE to others. I am a co-survivor / caregiver and a lover of golf. Joey - Your ROCK ! You are a True Inspriaton to others, to golf fans, cancer survivors and non-cancer survivors.

Your fight and determination to Live a QUALITY of Life will sustain you and bring HOPE to others.

I am a co-survivor / caregiver and a lover of golf.

Joey - Your ROCK !

]]> Comment on First Blog by Mom http://blog.therippeleffect.com/2008/10/26/first-blog/#comment-2 Mom Sun, 26 Oct 2008 16:47:17 +0000 http://blog.therippeleffect.com/2008/10/26/first-blog/#comment-2 Glad you got it going Joey. This is Cindy, Joey's mom, I will be posting some on Joey's blog too. Hopefully between the two of us we can provide bits of insight into what it was like, and what helped going through this cancer thing. Glad you got it going Joey. This is Cindy, Joey’s mom, I will be posting some on Joey’s blog too. Hopefully between the two of us we can provide bits of insight into what it was like, and what helped going through this cancer thing.

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